All the neighbouring schools declined to admit Kakangula because of his
disabilities, his mother Vivian Sekamatte, says. It is the reason he goes to
Buddo Parents Academy School – some three kilometers away – which accepted to
take him in.
For the young boy, it has not been easy at all, as he needs special
attention. For instance, he cannot visit the toilet on his own, so he must be
helped.
Before joining his current school, located in the village of Nsaggu in Wakiso
district, fellow children used to laugh at Kakangula because of his condition.
“It had turned him into a loner and he would play only with his sister. But in
his current school, things have changed as both children and teachers love him,”
says his mother.
Only a month after his birth, the boy’s parents were plunged into a trying
period of time when his health state took a wrong turn. For them, it was a
recurrence of what they had years back experienced with their first born who
developed cerebral paralysis before eventually dying at the age of two.
Earlier, after the birth of their first child, Sekamatte continued to sell
second-hand clothes while having the baby strapped around her back. And when
death came knocking at her door, it took her another five years to settle on the
idea of conceiving again.
“For five years after his [first born child’s] death, I refused to get
pregnant fearing to face the same challenges – not until I got enough
counseling,” she says. Clearly, losing her first child had traumatized
Sekamate.
And when she eventually did get pregnant again, she made sure to visit the
doctor many times to confirm that her unborn baby was well. But seven months
into her pregnancy, during one of such medical trips, Dr. Samuel Kaggwa checked
her and told her there was a problem.
She was advised to prepare for a caesarean birth because the position of the
unborn baby (Kakangula) was not proper.
At birth, the doctors noted that the baby had a number of problems –
including one to do with his genitals – which until today have not been
corrected yet. Doctors advised the parents to monitor his head as they feared it
might start swelling.
And indeed, one month later, little Kakangula’s head began to swell.
“He was treated at Katalemwa and we were lucky the swelling stopped before we
took him for an operation at CURE hospital in Mbale,” recalls his father.
The boy missed the crawling phase and only started walking at the age of
three.
“Although he cannot speak, he at least understands everything we say while he
can read [softly] and write,” says his mother Sekamatte.
Despite his challenges, Kakangula is raring to take on life with as much
enthusiasm as any other boy of his age. He has promised his parents that he will
strive to become a doctor one day and treat sickly children like him. For now,
he enjoys making drawings in his book, of course in the company of his beloved
sister. Theirs is a close-knit sibling connection.
“He feels great when we come up to help him with his work. It makes him proud
when we praise what he has done at school,” adds his mum.
Kakangula is not the only one who dreams big even in the face of life’s
brutality.
Fellow seven-year-old Hadija Mubiru, who almost lost her life due to her
mother’s recklessness, aspires to become a teacher when she grows up.
Many children her age speak highly of their mothers but for little Hadija,
it’s a whole different case. When I catch up with her at Victory Kindergarten
and Day Care Centre at Nalugala in Wakiso district, she bluntly states what
caused her disability. For her age, she possesses a sense of maturity that
impresses me as much as it does move me.
“My mother Betty Nambajjwe took to drinking alcohol and whenever she became
annoyed, she would throw me around like a useless object.”
I can see the sadness in her innocent eyes and sense the pain in her voice.
Quite frankly, I am moved when she admits that she has not forgiven her mother.
It’s easy to understand why she says so: her mother never bothered to take her
for treatment after causing dislocations in her chest.
It is even claimed that Hadija’s abusive mother once poured hot water on her
then eight-year-old son Shaban (Hadija’s brother), apparently leading to his
death a few hours later. She was then reportedly arrested and detained at
Entebbe Police for three days, before being set free without being admitted into
a hospital for a mental-health examination – to check her state of mind.
Thanks to little Hadija’s paternal grandmother, she got a new lease at life.
Her intervention during that difficult time for Hadija potentially proved the
difference between life and a sad ending for the innocent girl.
According to Grandma Hadija Nalongo Mubiru, Hadija’s mother would often leave
her husband’s home and be away for several months. She did so six years ago,
taking baby Hadija along with her – to God-who-knows-where.
Sadly, she continued throwing her baby down, causing more damage to her
body.
“By the time they brought baby Hadija to me, she was a totally disabled
two-year-old girl. She could neither sit nor walk. She would only lie in one
position, and often messed herself up when the need to ease herself arose,”
recalls Nalongo.
The girl’s paternal aunt, Nakato Mubiru, says their home was no longer
habitable with the sickly toddler who soiled herself and attracted a lot of
flies. On top of that, the sound she made in her sleep due to her strained
breathing could be heard by neighbours.
Nalongo grew more and more worried that although Hadija was born with a sound
brain, the acute pain she lived with had affected her mental state.
After trying all sorts of treatment, Nalongo ended up at the national
referral hospital in Mulago where Hadija underwent an operation at the Spinal
Ward.
That surgery provided much-needed respite with Hadija delighttfully shocking
her grandma when she sat on her own only two days after the operation. “I was
coming from the canteen and suddenly dropped everything and ran to the doctor’s
room fearing she was going to die,” remembers Nalongo, who instead found better
news awaiting her.
Hadija knows how fortunate she was and she still relishes that turning point
of her life: during my interview with her grandmother, the little girl chips in
and proudly tells of how she sat unaided after the surgery.
On the fourth day following her operation, Hadija could stand and walk by
clutching onto nearby hospital beds. She was discharged after one week.
“The swellings in the chest and back remained but at least her breathing
improved greatly and she can sit and walk normally,” smiles Nalongo.
According to Nalongo, little Hadija’s state was so bad and she believes that
some parents would have hidden her from the public. “I took into account her
rights as a human being and it was the reason I sought treatment and kept her in
the public,” she says.
Nalongo believes that if she had not intervened, Hadija would have lost her
normal mental state. She calls upon other parents to fight for the rights of
their disabled children, adding that showing them love catalyzes their healing
process.
Yet, such accounts are many in our society.
Margaret Nalumansi, a market vendor at Kawuku market, near Kisubi along
Entebbe road in Wakiso district says difficult times prevented her from keeping
her daughter’s rights.